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TBgirl
11-07-2009, 05:48 PM
I have been having these bizarre symptoms for a very long time, but they are getting worse. For example, tonight I went out to dinner with my boyfriend, and when I was almost finished with my meal, I got real hot and felt like I was going to faint. I almost fell over forward in my chair but did not faint. Then I got bad anxiety. I've had anxiety all my life. I also have Hypoglycemia. Here is the thing though,,,anytime I have a physical symptom people (including doctors) tend to blame it on anxiety. But the thing is, you KNOW your body. Some of these symptoms I'm having are not anxiety. However, when I get these weird episodes I do get anxiety because I start to freak out. I have this problem when I stand in lines at stores...I'll get dizzy, (very dizzy), then I'll start to sweat and feel like I am swaying back and forth. I will even pray to God that I don't fall over.

So, I finally did some research tonight and every single symptom I have goes along with neurocardiogenic syncope. I was wondering if anyone on here has this or knows about it? I'll ofcourse call my doctor Monday and ask to be checked out. With this condition, it also says that after a strenuous physical activity you will become extremely fatigued. Everytime after I ride Cherry I feel so tired, like I need to sleep. They say to increase salt intake and drink more fluids to help with this, which I am going to do. I know I have to see the doc to definitely determine what is going on here, but I am so upset over this right now. I knew in my past that I had Hypoglycemia (I self-diagnoised myself). Everyone was telling me "oh your young, thin, healthy...nothing is wrong it's in your head and probably anxiety." Well, come to find out, after my glucose testing I DO have Hypoglycemia. I am just sick of everything being blamed on anxiety. I shouldn't be having anxiety when out to dinner with my boyfriend, come on now. I know these symptoms are something else.

Well, thanks to anyone who reads this. I will update after I see my doc. Like I said, I was just wondering if anyone on here has this condition, or knows about it.

Edited to add: I also tend to have lower blood pressure but was told that it's nothing to be concerned with (that it's not too low for my age/weight/etc.). But...lower blood pressure and Hypoglycemia (low blood sugar)...why do I run 'low' with all these things? It's weird to me.

oursarge
11-07-2009, 06:12 PM
Good Luck, hope you do find out what is wrong. What you are having sounds like panic attacks too but if the other seems like your symptoms it could be that there are so many things with the same symptoms and anxiety always gets blamed for everything. I'm the classic case of "It's anxiety, it's your nerves, you're just like your mother" I got that my whole life so when I was real sick I kept telling myself it was just nerves but after I needed a ton of medication just to leave the house I finally went to the natural healer everyone here goes to and found out I had yeast in my intestines AND a thyroid issue [I had 4 thyroid tests all come out normal when I had all the symptoms of an underactive thyroid]. I cried when I finally found out I did have something because she was the first one who took me seriously. I still do have alot of anxiety, nobody seems to be able to help me with that [even the herbal anxiety stuff upsets my stomach] but now I know that I had other issues too.
Anyway I hope you get straightened out and feel better soon.
You're not in NY are you? Like around Sullivan or Orange Counties? If you are and you are interested in who I go to I can give you her name. She has helped so many people. Start out with the regular Drs but if you don't get any satisfaction and you aren't far from Shahola she is great. She brought my friend back from almost being dead. She would get so sick around the holidays, when she doesn't go to the barn you know she's sick, when she doesn't call a couple times a day you know she's sick. Anyway she went there and found out she's allergic to alluminum and they were cooking in aluminum pans. She's also horribly allergic to real trees so now they have a fake Christmas tree too, we are both allergic to real trees. She also has gluten allergies and so many other things. I thought I was bad but she's way worse. We both have to be real careful what we eat and help each other when we want to cheat.

JackieB
11-07-2009, 06:15 PM
Good luck with figuring it out. I can see how it would be frustrating.

Remali
11-07-2009, 06:20 PM
I know exactly what you mean...... stick to your guns and ask your doctor run tests, it isn't in your head.
Low BP and hypoglycemia can cause you to feel faint, how low does your BP get? Maybe you can get checked out right away when you have these symptoms? Altho I know it's hard to get to the ER or Urgent Care on time while having symptoms. When I was having those heart problems the doctors just could not figure it out, by the time I'd get to the doc or to the ER my heart rhythm would go back to normal.....but then one day in 1997 they did get a reading on the EKG and so were able to make a diagnosis, but I went all those years (from 1970 to 1997) until we knew what it was I had. Drove me nuts.

So, I'd go to as many doctors it takes to get to the bottom of it if it were me. I too sometimes get a little bit the way you feel, I don't have anxiety, but once in a while I get warm, woozy and faint feeling, and fatigue has been a major issue with me for a few years now.... I'm still not sure why I get that, but I sometimes have high BP and my hypoglycemia really acts up if I don't eat real frequent meals..... does eating every few hours help with your symptoms a little bit? I find if I don't eat at least every 2 or 3 hours my symptoms get worse.

I don't think it is all in your head..... and being young and healthy doesn't mean you couldn't have some condition..... I was only a kid when I developed my heart arrhythmia (supraventricular tachycardia) and I was only 11 years old when I was diagnosed with stomach ulcers. I hope you can find a good doc who will run tests and find out for you.

Let us know how you are doing! :)

allie0
11-08-2009, 01:15 AM
Good luck! It sounds terrible :(

cyb
11-08-2009, 04:49 AM
I have sort of the same problem so I understand how you feel. I have a hard time waiting, the longer I wait the worse I feel, I just feel like I can't wait any longer and I just have to get out of there, it could be waiting in line or sitting in the waiting room to see a doctor things like that. Sometimes it happens when I'm riding which really worries me because I don't want to give it up but I'm embarrassed to tell the people I'm riding with because I don't want them to think I'm crazy.

oursarge
11-08-2009, 05:38 AM
I have sort of the same problem so I understand how you feel. I have a hard time waiting, the longer I wait the worse I feel, I just feel like I can't wait any longer and I just have to get out of there, it could be waiting in line or sitting in the waiting room to see a doctor things like that. Sometimes it happens when I'm riding which really worries me because I don't want to give it up but I'm embarrassed to tell the people I'm riding with because I don't want them to think I'm crazy.

I know that feeling and one reason I don't shop, if I see a bunch of people in line I start to get real nervous. My husband has started to shop alone, it's easier on him. We live in an area without alot of traffic which is good. Sometimes when I go to the stable [8 miles away, it takes 12 minutes] I'm the only vehicle on the road, nobody passes me or is in front of me or behind me. Anyway we're not used to much traffic. We visited my cousin in NJ and the traffic was stopped bumper to bumper. I started to get weird feelings like I wanted to get out of the vehicle and start walking because I got so nervous. I don't know how they live like that! I'd be in the assylum I think.

I won't wait in a Dr's office. If I have to wait more than an hr I'm out of there. My time is as valuable as theirs. When I hear people waiting 3 or more hrs to see a Dr it boggles my mind. I'm also like that riding, after a certain point I'm done and one reason I don't like trail rides because I could be done in the middle of a ride!!!!

I wonder what we have? It's got to be something since it's pretty much the same. I know I was born with no patience but I think it's way more than that because the feelings are really scary. I do take xanax because things were getting real bad, that calms me a little.

vicklynn
11-08-2009, 06:09 AM
I hope that what ever your problem is, that it is found out and something can be done about it.
((HUGS))

Gypsy Rose
11-08-2009, 06:40 AM
Good luck! I hope you can find out what's wrong.

TBgirl
11-08-2009, 07:08 AM
Thank you so much for the replies!

Sarge- Your right, It has almost the same exact symptoms of panic disorder. That's what's upsetting...I read about neurocardiogenic syncope and then at the bottom of the page it says "these symptoms could also be caused by"...and then it lists panic disorder, hypoglycemia and a bunch of other things. That leaves me thinking, then what the heck is causing this? I do feel I start to almost panic when I have to wait in long lines, but I do deep breathing and tell myself it's just anxiety and the dizziness is what get's me the worst. The other thing is I can't understand why, if, this was anxiety...it would be happening when I am out with my boyfriend, or a day when I am shopping with my mom. For another example, when my mom is looking at something deciding if she wants to buy it or not and I am just standing there I start getting dizzy. I am sorry to hear you've been having those problems too. I definitely would much prefer a natural healer. My other issue is I am not a big fan of medications. I know some people greatly benefit from them, but so many people (amost the whole world it seems) are on anti-anxiety and depression meds. It's like it's almost routine now to prescribe them (I've never taken any meds for anxiety btw). Does the xanax help you?
I live in Oneida County. I will mapquest to see how far those counties are that you said the doc is in. I would be willing to travel to get help. If I knew for a fact that this was anxiety/panic I am living with I think it would make my life alot easier. But, still I can't help but think it's something else too...and I really want to figure it out.

JackieB- Thank you! I hope I get this figured out. I get frustrated though with going to the doctors and also all the money you have to spend...ugh. lol

Remali- Wow you had alot going on at such a young age! :( I am sorry to hear that. I'm going to stick to my guns though, as frustrating as it may be. What's funny is after having symptoms of Hypoglycemia my whole life I self diagnoised myself and asked, practically begged my doc to let me take the glucose testing. After he finally did, sure enough it came back I had that. My mom and everyone were surprised since they were telling me it was in my head.
I'm not sure how low my BP get's when I have these attacks. But, when I go to the doc and they take it routinely it is just always on the lower side (110/60ish) which I know isn't that bad and it is considered to be "normal" for my height/weight (I am 5'4 and 113 lbs). But still makes me wonder why am I lower BP, low blood sugar etc. Yes, I definitely feel better with the hypoglycemia if I eat ever 2-3 hours a small meal. I am constantly eating and everyone is like what the heck lol, but it really does help. If I don't eat for a long period of time I get shaky and my hands get clamy...I even get miserable.
Well I will keep you updated since I really want to get to the bottom of this. Gosh even if it was anxiety that's not good because prolonged episodes of anxiety can put a strain on your heart etc.

allie- Thank you hun!

cyb- ((Hugs)) sorry to hear you have similar problems like this. Yes, mine is when waiting in lines and when I have to wait for the doctor when I am sitting in the waiting rooms or even in the examination room. I too have had this happen when riding. I could just be walking on the horse and then feel dizzy but I do deep breathing and it usually goes away. I notice if I really work out alot on the horse then it may get worse. I am actually going to bring poweraide out today when I ride to see if it helps. I hope you figure this out too. I hate it when people make you feel like your crazy. These are very true symptoms whether they are anxiety-induced or not.

vick- Thank you very much! I sure hope so too.

Gypsy- Thank you, I appreciate the support!

TBgirl
11-08-2009, 07:15 AM
Wanted to add that I also have light sensitivity. It seems when I go into a department store with white floors and bright lights that dizziness get's worse. Also if I am in a setting where it's dim lighting...not quite dark, but not bright it bothers me. I read that light sensitivity can be an inner-ear problem or allergies. I know I have bad allergies. Who the heck knows...lol.

cyb
11-08-2009, 11:59 AM
I forgot to add it also happens when I go places with a group of people without my husband(such as out to dinner or shopping or to a theme park), he is my security blanket I guess, most of the time when he is with me I'm fine, but he doesn't ride at all so I'm on my own there.

oursarge
11-08-2009, 12:17 PM
I had a whole thing written and lost it. When you check your map look for Shahola PA that is where she is. It's about a 3 month wait for an appointment because the first one is an hr and she's booked solid, she works 11-12 hrs a day 5 or 6 days a week. She is in demand because people are so sick of not being treated the right way by regular Drs.

Anxiety runs in my family on both sides and it's terrible. So many people have it though, a co worker of my husband's would have panic attacks while shopping and would have to run out of the store leaving cart and all. You might also be allergic to the store lighting or even the fabrics in the store, there are some places if I go in I have an instant allergy attack. Anyway back to anxiety, unfortunately without help that can turn into agoraphobia. I have an aunt with that, she didn't leave the house for 20 yrs 'til she had a heart attack. She stopped leaving the house after having some panic attacks while being out so she figured if she stayed home it wouldn't happen but it does anyway. I get them at home too. I worry though since this is in our genes I don't want to end up like her. They helped both her heart and anxiety with medication but then she stopped the anxiety medication and she's back to staying in the house again but she will use the phone. I really hope that you can get this figured out because it is a scary thing. My natural healer says Vitamin B 12 deficiency [sp] can cause anxiety and depression and other things but I can't take it because my stomach revolts. The Xanax takes the edge off but I can't say it helps alot. I might need a higher dosage but I don't want to go any higher so I just try to deal. Good luck, I hope so much they find what is wrong and there is help for you. I hope it's not anxiety and there is an easy fix. Good Luck.