Gypsy Rose Needs thoughts and prayers!!! [Archive]

WashingtonBay

11-17-2008, 09:04 AM

I just talked to Gypsy Rose on the phone.....she doesn't have any news updates for us yet, but she will let us know soon as she hears anything. Her SO is still at the hospital in Fargo and it sounds as if the doctors are doing everything necessary.

I'll take it as a very good sign that he made it to Fargo and they're assessing options... with aneurysms, I think you have little warning and not a lot of options if they're going to be bad.

Is she in Fargo also? How far is that from their home, and does she have options for care of her critters in the short term?

Nudge_gurl58

11-17-2008, 09:10 AM

Omigosh, this is the first time I've been on here since Saturday, and I just saw this!!!

SENDING GOOD THOUGHTS!!!

KittySawrus

11-17-2008, 09:13 AM

D: oh noes!!!!! Poor Gypsy Rose!!! Gosh, I hope her SO's OK :( brain anyuerism...crikey D: healthy thoughts & vibes for him, hugs for the both of them!!

vicklynn

11-17-2008, 09:17 AM

Oh my gosh, how sad. Prayers up for him, many ((HUGS))for her.

Ranger44

11-17-2008, 09:26 AM

Thoughts and prayers for sure!

I think Fargo would be a couple hours drive for GR.

WashingtonBay

11-17-2008, 09:28 AM

Ah - I see GypsyRose here... Bless your heart, I hope you both are OK.

Mercury

11-17-2008, 09:33 AM

Prayers with GR! I'm from Fargo (don't live there now but my family is there) so if she needs anything I may have some connections for her whether it be animals or just someplace to get dinner. Which hospital is he at? Several people from the barns I worked at are nurses at the hospitals.

JetLagaside

11-17-2008, 09:35 AM

Prayers to eveyone!

Gypsy Rose

11-17-2008, 09:37 AM

Thought I'd pop in here for a bit- so far, I've had no updates, however the EMT that came out before the ambulance got here is a friend of mine, and he's on his way out to talk to me- maybe he'll be able to tell me a little more.

Right now, I'm at a friends- fed the animals and made sure everything was okay at home.

There's no way I would have been able to go with him- no place to stay. If I have to, I'll be able to get a ride there, but I was told at this point, there would be nothing I would be able to do- he's not concious or anything.

As soon as I know something, I'll update further.

Thanks so much everyone for your thoughts and prayers.

Apaches Mom

11-17-2008, 09:41 AM

Many prayers and positive thoughts. Hopefully you'll have some good news soon.

WashingtonBay

11-17-2008, 09:42 AM

Oh dear.

All the best to you, it must be very frightening.

If you need to go, they can give you a cot right there at the hospital, once he's in a room. At least, they did when my mom was ill. How far of a drive is it for you?

Gypsy Rose

11-17-2008, 09:47 AM

It's a good 2 hour drive, and I know my car wouldn't make it- however if i have to, either my EMT friend or one of my godparents should be able to take me.

vicklynn

11-17-2008, 09:51 AM

((HUGS))Gypsy. Prayers up for him hon. I hope you know something soon.

Annie&Dixie

11-17-2008, 10:11 AM

Oh Gypsy! I just found this, I'm sending you the best wishes and good hope! This has to be hard for you, hang in there :)

Gypsy Rose

11-17-2008, 10:27 AM

I just tried caling MeritCare in Fargo, and the nurse is away from her desk- I'll be trying again in a little bit.

FrogInABlender

11-17-2008, 10:28 AM

Gypsy, I just saw this and I'll keep you and your SO in my prayers!

lovesfortune

11-17-2008, 10:54 AM

Hugs to you Gypsy. Maybe Mercury would be able to put you in touch with someone that might let you stay with them if you can't stay at the hospital?

I hope you get some answers soon. We are all still praying for you.

Remali

11-17-2008, 11:10 AM

Glad you were able to make it on here for a bit. Hoping the nurse can call you back, or is available to talk to you if you try calling again. The waiting part is the worst.

Gypsy Rose

11-17-2008, 11:21 AM

The nurse is still away from her desk, lol! They now have 3 phone numbers where i can be reached, though.

alittleoffkey

11-17-2008, 11:26 AM

(((((hugs))))). Prayers for both of you.

FoxFireEMT

11-17-2008, 11:56 AM

Wow that stinks. Prayers & thoughts coming her way...

Gypsy Rose

11-17-2008, 12:04 PM

Thank you so much everyone! I just got off the phone with the critical care nurse in Fargo. Jake is responding to stimuli on command- squeezing hands and moving toes- a good sign.

They still have him intubated and on sedation- they let him come out of sedation every four hours to make sure he's still responsive. Hopefully, if all goes well, they'll try taking him off the ventilator tomorrow. I'll be calling for another update around 5 this evening.

Thanks so much for the good thoughts and prayers!

I'll be offline until this evening, but I'll update everyone then with more news, hopefully!

sugarsgirl

11-17-2008, 12:07 PM

Oh, no, I just saw this and I'm so sorry to hear this. My thoughts and prayers will be with you.

WashingtonBay

11-17-2008, 12:07 PM

Hopeful update.

I'll be looking for you to get back on.

lovesfortune

11-17-2008, 12:12 PM

Thanks for another update Gypsy. I'm glad you got to talk to someone who could give you some more information.

Nudge_gurl58

11-17-2008, 12:22 PM

Glad it's a hopeful update!!
Sending good thoughts your way!

Peggy Sue

11-17-2008, 01:13 PM

If you dont' keep us updated I am gonna have to make one long drive to kick your booty woman!!

Glad to hear the update is good... tell Jake he has to get better soon so I can argue with him some more

PoniesRock101

11-17-2008, 01:51 PM

oh no! i knew there was a reason i didnt manage to get on this morning! hope jake is doing much better soon. Best wishes Gypsy, dont stress yourself waiting!

Arrow

11-17-2008, 02:07 PM

((((hugs)))) plus thoughts and prayers--waiting for updates!

mare

11-17-2008, 02:18 PM

Thoughts and prayers for you and your SO. Glad you got some encouraging news.

Gypsy Rose

11-17-2008, 03:25 PM

You guys are all so awesome! I don't know what I'd do without my forum family right now.

I just got off the phone with the nurse- unfortunately, no change in his condition since I talked to them this afternoon.

I will be calling again before I log off here tonight- hopefully I'll have a more positive update. At least he hasn't made any change for the worse- I was just hoping for more progress I guess.

Remali

11-17-2008, 03:28 PM

That has to be frustrating. Maybe because he is sedated too, would that have much to do with it I wonder?
I am glad he is not any worse tho, that is very good.

WashingtonBay

11-17-2008, 03:30 PM

Well, we're here for you, even if we feel rather useless to actually help. I just don't know a thing about this. I hope you can have a frank conversation with his doctor by tomorrow. Can you get a ride in there you think?

mtnmollie

11-17-2008, 03:36 PM

yikes! I just saw this thread-

Hugs and prayers-

PoniesRock101

11-17-2008, 03:38 PM

fingers crossed the next update shows improvement! Hang in there!

Gypsy Rose

11-17-2008, 04:09 PM

Right noow, getting a ride there wouldn't provide me any more answers than I already know. My EMT friend and his brother- another EMT believe it or not, just went through something similar with their own father about a year ago. They basically told me there was no point in going out there yet- the doctor seriously wouldn't be able to tell me much.

He's only slightly improved since he left here. I did talk to the doctor here, and he filled me in quite thoroughly- I knew all the meds they were giving him- which they're still using the same or similar in Fargo- I got to see the CT scan, as well.

I'm already in the process of rounding up rides. I'm sure eventually I will end up going out there- hopefully when he comes to, and actually realizes I'm there.

WashingtonBay

11-17-2008, 04:12 PM

How did this happen, Gypsy... did he just collapse, or did he start feeling bad or ???

Gypsy Rose

11-17-2008, 04:37 PM

He felt kind of off the evening before- numbness and tingling- trouble using one leg and arm, but he was 100% coherent- therefore, I couldn't get him to go in. I tried- stubborn!!! 15 minutes or so later, he semed completely fine- even stayed up for a bit and watched TV, though not very long- maybe 10 minutes before he crawled into bed.

He was tired and drug out all day yesterday, but we'd both been up late the night before, so I didn't think anything of it.

He complained of a headache- not a heavy one, I guess, but enough where he decided to take an Imitrex about 3:30 yesterday afternoon, right after feeding.

When he went to bed, he was fine.

The abbreviated version is that I woke up to him acting like he was having a seizure, but he came out of it before I could call and seemed fine. Guess what I got told when I wanted him to go in, lol! If I had called an ambulance and he refused treatment at that point, they would have had to leave.

Upshot of it is, he started going downhill and it wasn't long before I didn't give him any choice and punched in 911. He had a total of 4 seizures before they got him stabilized in ER- it's almost scary how much sedation they had to give him.

WashingtonBay

11-17-2008, 04:42 PM

Aw geeze. Sounds very scary. Don't you hate dealing with people who are difficult about doctors?

oursarge

11-17-2008, 05:15 PM

That is very similar to my mother. She complained of a headache then not long after had a seizure, she only had one though but stopped breathing. My father did mouth to mouth and got her breathing. She went to a local PA hospital [We were visiting family in PA at the time] and they transported her to Temple University Hospital after doing a head X-ray. That was before they had MRIs and CAT Scans. She had the anurysm but it didn't really explode or what ever they do because it must have been leaking a long time [She had sort of mini epileptic things for yrs and nobody ever took them seriously, now we know it was the anurysm] and had formed a calcium deposit that helped to keep it from doing anything. They tied the artery off and she has been fine since. Her eye site is a little off but that's it, she does take anti seizure medication every day too. I was 17 at the time. It was very scary. A few yrs ago they thought she had a brain tumor but it was the calcium, it's still growing but it's OK, no treatment necessary.

I hope that your outcome will be as good. I am sending good thoughts.

vicklynn

11-17-2008, 05:22 PM

Wow, I sure hope he comes around soon and you can go see him.

valleyrider

11-17-2008, 06:09 PM

Just saw this thread now! How scary for you Gypsy. My thoughts and prayers are with you and your family.

Gypsy Rose

11-17-2008, 06:25 PM

I just got off the phone with the nurse again- there's been slight improvement- he can still squeeze hands, and is responding a bit more- he was able to give them a thumbs up. Hopefully, they'll start weaning him off the ventilator tomorrow morning. I'll update this again as soon as I know anything- probably be after 8:30 A.M.

Thanks so much everyone for your thoughts and prayers!

qh trail rider

11-17-2008, 06:34 PM

I am hoping and praying that you get good news very soon. Even if you can't really do anything at the hospital, if I was you, I would head that way as soon as possible. Your SO needs your support and maybe he could sense your presence. IMHO, you need to be with him. Is any of his family with him?

PoniesRock101

11-17-2008, 06:53 PM

awww glad hes doing a little better! best wishes for tommorow!

Gypsy Rose

11-17-2008, 06:53 PM

I'm basically all the family he's got. I am keeping in close contact with the nurses, and I'm hoping that I'll be able to do something about getting up there. Right now, I really need to just get some sleep- I've pretty much been up since yesterday morning!

PoniesRock101

11-17-2008, 06:59 PM

get some sleep!

starkitten

11-17-2008, 07:08 PM

get some sleep Gypsy- good thoughts and prayers heading toward you and you SO

Arrow

11-17-2008, 07:27 PM

As to not wanting to get help...men!

But glad that he seems to be improving! I've been thinking about you, and will keep watch for updates. Hang in there--you've got a massive amount of positive energy heading your way from all of us, that's got to help!

Remali

11-17-2008, 07:32 PM

I sure can relate to how hard it is getting someone to go to the ER. There just isn't much you can do if they refuse to go. I went thru that with my parents, altho after they got really horribly ill, then they went in, but it was a major scene and a battle.

Hoping tomorrow brings you some good news.

mouse

11-17-2008, 09:24 PM

So sorry this happened
big hugs

AppyLady

11-17-2008, 09:58 PM

I'm sure glad he's showing some improvement. I'll be thinking good thoughts for both of you.

grandmadeb

11-18-2008, 04:34 AM

Oh No, I was off yesterday with no power and yard work. Glad he is doing better and that he is showing encouraging signs. You both will be in my prayers.

vicklynn

11-18-2008, 04:48 AM

Glad to hear that he is starting to respond. Prayers for continual healing.

Toodlestoo

11-18-2008, 05:23 AM

I'm saying prayers for you. Hopefully, today will be continued good news and progress. Remember to take care of yourself too. Stress can play havoc on your body. Eat, rest and get a good night's sleep! I know it's easier said than done. We're here for you.

lovesfortune

11-18-2008, 05:42 AM

Glad to hear you got a hopeful update last night. Looking forward to another good update this morning.

Peggy Sue

11-18-2008, 05:43 AM

waiting for the morning update .....

Gypsy Rose

11-18-2008, 07:06 AM

I'm waiting for the nurse to call me back- I'll update as soon as she calls.

Just so you all know- I did sleep last night- got a good 9 hours of sleep. I think even the cats knew better than to bug me. Either that, or I didn't hear them, lol!

And I have eaten- sort of!
When I was at my froend's yesterday, I got a hamburger shoved in front of me and ended up eating that,and this morning, I had an English Muffin. Not much, but better than nothiing!

vicklynn

11-18-2008, 07:21 AM

Ya gotta eat my dear, not gonna make him better by you getting sick.
Hoping the news comes soon, and is good news.

Peggy Sue

11-18-2008, 07:26 AM

Ann you have to eat and take care of yourself to be able to take care of not only Jake when he is ready for your care but you have all those critters to take care of!!!!

Hoping you get good news this morning!! sending healing thoughts and vibes still ....

oursarge

11-18-2008, 08:19 AM

Hope the news is good today. It's so hard when a loved one is sick.

Gypsy Rose

11-18-2008, 08:39 AM

Does half a ham sandwich count?

I think I'm going to try calling again- worried that the nurse hasn't called back.

Gypsy Rose

11-18-2008, 10:43 AM

I called the nurse, and it's not looking too good right now.

He became unresponsive sometime between last night and this morning. He's still on the ventilator and sedated at this point.

The simplified version is that his creatinine levels in his kidneys are building up. That means the toxins are building up in his kidneys, and he's going into kidney failure. They're not sure yet if that's the cause of his unresponsiveness or not yet. They're going to be doing an ultrasound, and there's a possibility he may have to be put on dialysis.

There's a possibility that his previous hospitalization records may be requested. I'm in the process of finding out if I can go in today and sign the release in case they need it.

So if I'm offline for a while today, that's what i'll be doing.

I won't be able to get another update until late this evening.

Thank you, everyone for being here for me- it means so much.

oursarge

11-18-2008, 10:47 AM

Oh No, I hope things will change for the better next time you talk to the hospital. This is all so sad for him and you.

WashingtonBay

11-18-2008, 11:04 AM

I am so sorry Gypsy Rose. We'll be praying for you both.

Remali

11-18-2008, 12:36 PM

Oh no, I was hoping for good news. Well, don't give up.....you never know, I am praying he gets better.
I may be wrong, but is a release of info necessary for continuation of care? This is something I should know because I went to school for Health Information, but that was back in 2001 and I never did work in release of information.

lovesfortune

11-18-2008, 12:38 PM

Sorry to hear about his kidney's Gypsy. I am still praying for you and him and we will all keep you in our thoughts.

vicklynn

11-18-2008, 01:05 PM

Due to HIPPA laws, she will not be able so sign the release, unless she has power of attorney.

I am so sorry for what is going on Gypsy. Prayers are up for both of you.((HUGS))

Remali

11-18-2008, 01:06 PM

Dixie

11-18-2008, 01:14 PM

Oh honey I am so sorry to to hear about this! No idea how I missed this thread until now!

Many, many hugs and good thoughts and prayers for you both!

vicklynn

11-18-2008, 01:23 PM

But, is a release needed for continuation of care when the patient is in the hospital? Geez......my memory is so crappy! I learned this in scool, of course that was 6 years ago, and I think I have Azlheimer's.......!
If a patient has to get records from another hospital, doctors office, outside the loop, then yes, they need a medical release. Im not sure in his case, being so severe if it over rides that or not(I think it dosnt matter though, rules are rules). I took 2 HIPPA classes, and its pretty tough, you cant even let your spouse sign for your records. I have seen HIPPA violated enough, and I think I even ticked my super off a few times cause I was a HIPPA nut. I was NOT going to jail nor being fined 50K for someone wanting me to give them medical records, nurse or not, I need a siggy from the patient, on my HIPPA form, ID please.

PoniesRock101

11-18-2008, 01:37 PM

EEK! hope its not kidney failure. best wishes that he starts getting responsive again. hope if you do sign the release today its not a huge mess with a long wait.

Arrow

11-18-2008, 01:37 PM

Waiting and hoping and sending good thoughts...

Ryderd65

11-18-2008, 01:46 PM

~Sending (((hugs))) and prayers to Minnesota~

Driftin

11-18-2008, 02:38 PM

http://img.photobucket.com/albums/v720/jsdkhart/Smilies%20and%20such/Cue50066.jpg

Nudge_gurl58

11-18-2008, 03:04 PM

I'm thinking of you Gypsy... I'm sorry it wasn't a positive update hopefully the next one will be better!!!
I was at the barn and then in town all day, so I couldn't get on till now.
I hope he'll get better soon!!!

Sending Happy Thoughts and Get Better Wishes your way!

Gypsy Rose

11-18-2008, 03:56 PM

Okay- I haven't been able to get an update yet on Jake's condition- I was told to call after 7. However, I may or may not run into another dilemma.

I went in and spoke with the woman in Medical Records. At this point, hopefully, if the records are needed, the hospital in Fargo will be able to have a fax sent without a signature.

The bad news, is that since I'm Jake's EX wife, I can't legally sign any papers regarding his care! Here's the clincher- he has a sister, but she is severely mentally disabled, and is incapable of making sound decisions. She has a caregiver in charge of her funds and basic needs. Yet I was told that SHE would have to be the one to make any decisions regarding Jake's care! I tried to explain the situation to the woman, and it basically fell on deaf ears.

I did talk to his sister's caregiver, and she agreed that we may have to go in together if it comes down to anything like that, and get it through their thick skulls that his sister is not a competent adult capable of making decisions regarding her brother's care.

I don't need this...

Arrow

11-18-2008, 04:01 PM

Oh, wow...stay strong. Who's there to help you along with all this--some real moral support and hugs as opposed to the forum kind which are very wonderful, but not tactile...

lovesfortune

11-18-2008, 04:02 PM

HUGS to you Gypsy! I'm sorry that this is added on to everything else. I hope you get it figured out and I hope that you get an update on his condition soon.

Toodlestoo

11-18-2008, 04:04 PM

Sending good thoughts and prayers!

Gypsy Rose

11-18-2008, 04:12 PM

I do know my godfather might have some insight into this kind of thing, but he's out of town at the moment. I have a few other people I can talk to as well.

Maybe his sister's caregiver can get a doctor's statement regarding Jake's sister's incompetence? Something I'm going to look into.

lovesfortune

11-18-2008, 04:13 PM

Have you thought about going there yet?

Gypsy Rose

11-18-2008, 04:40 PM

I talked to the nurse about visiting today, and she advised against it at this point- especially since he's gone unresponsive- she thought it would be best to wait and see. In the meantime, I've been securing rides- so I can get there as soon as I need to.

vicklynn

11-18-2008, 04:41 PM

Gypsy, I know you feel it fell on deaf ears, thing is, legality issues. I still am not sure how they are sending a fax without a signature. If it ends up in the wrong hands, anyway, thats another issue, I hope you or they get the info that they need. This is why people need to have Power of Attorney over their SO, and make sure it covers everything you want it too.
I Pray things turn around for him. ((HUGS))

mtnmollie

11-18-2008, 05:12 PM

ouch.

hugs and prayers.

lisakaye

11-18-2008, 05:13 PM

I wish the best for you Gypsy. I would suggest getting some kind of proof that his sister is mentally disabled right now in case you do need it. You need to contact a lawyer to find out how to go about getting POA if needed and start the action now to get it done. Does he have any other family? If he does then they can sign over POA to you if they agree. It may be worth a try. Did you tell them you were divorced? Take care of yourself and I only hope that you can get a ride into see him soon. No matter what the nurses are saying.. Sending my love and prayers.

Remali

11-18-2008, 05:27 PM

When I worked at the hospital in medical records (and when my mother was in the hospital too) in cases like this there is no need for anyone to sign for a release of information......if you are in the ER and the doc needs records....they can just get them right away ASAP, same with CCU. No need for a signature in that instance.

I agree with the RN, go see him when he comes around a bit....that is a very long drive and while he is unconscious there isn't much you can do for him.

If his sister is mentally incompetent, once they find that out they will not let her have say so over his care.

Gypsy Rose

11-18-2008, 06:26 PM

I just got off the phone with the nurse again- the bad news is that there's no change- the good news is that because of that, they have decided they don't need to start dialysis yet- how he is tomorrow may be the deciding factor.

As far as the records- I talked to a different nurse tonight, and she confirmed what Remali was saying- for critical care, they do not need a physical signature.

As far as Jake's sister, I have a feeling if there's a way she can turn Jake's care over to me, I really don't think there will be much problem with it.

Thanks everyone for your continued support.

PoniesRock101

11-18-2008, 06:54 PM

hopefully he improves tommorow, sounds like a mess with getting his sister and teh medical records. Good luck and hang in there!senidng good thoughts!

vicklynn

11-18-2008, 06:54 PM

Very good on the signature, I was hoping that would be the case.
I sure hope that he comes around. Prayers with you.

Gypsy Rose

11-18-2008, 07:02 PM

I'll be calling again in the morning- hopefully, I'll have a more positive update then.

lovesfortune

11-18-2008, 07:24 PM

I will be checking back tomorrow morning. Hope you sleep well again tonight.

Remali

11-18-2008, 07:54 PM

Oh that is some good news then, thank goodness.....I've been so worried. I hope tomorrow he turns the corner and does better!

Gypsy Rose

11-19-2008, 08:06 AM

Not good news this morning, I'm afraid. When I spoke to the nurse this morning, the order was put in to start dialysis. His creatinine level spiked up last night. I really hope the dialysis will help him. I really don't know what's going to happen at this point- a lot more will be known after he's had the dialysis and they run more tests.

lovesfortune

11-19-2008, 08:12 AM

How are YOU doing Gypsy? With all of this are you taking care of you too? ((hugs))

I'm still sending prayers and I hope that the dialysis works for him today and you are able to get some good news.

WashingtonBay

11-19-2008, 08:15 AM

Gypsy are you able to have good thorough conversations with his doctors from where you are? I'm worried about you being so far away and not being part of what's going on. No matter how this goes.

I sure hope for the best, and that you can get the help you need too.

Gypsy Rose

11-19-2008, 08:27 AM

So far, I'm doing okay- just trying to get things organized and get a routine established again- better for the animals. Probably me, too.

The CCU nurses have been fantastic- they did tell me that if I really needed to talk to Jake's doctor I could, but I know enough to know that at this point, the doctor won't be able to tell me much of anything until they see what the dialysis does. Then, if I feel the nurses aren't telling me enough, I'll ask to speak to him.

I did talk to my mother about this- unfortunately, she's spent way too much of her own life in hospitals, and from what I've been able to tell her, she's saying there's no point in talking to the doctor at this stage.

Trust me, if she thinks they're not telling me enough, she'll be telling me to speak to the doctor.

Remali

11-19-2008, 08:48 AM

Glad to hear that Jake is still holding his own OK (ther than being on the ventilator)....that is encouraging! That's wonderful the nurses can tell you so much, sometimes they can, and sometimes they can't and want people to talk to the doctor.....I've run into both. It's a good idea to try and stick with your normal routine if you can, and don't forget to take time out for yourself too.

WashingtonBay

11-19-2008, 09:26 AM

KittySawrus

11-19-2008, 09:42 AM

So many ups and down D: talk about emotional roller coaster! Cirvvens Gypsy!! I really hope the dialysis helps put things a little better...
It's good to hear he's still fighting, though. It's so random - my GP vet had an anyeurism back in July but was on her feet in 4 months...and telling off the nurses in 3 days :p...it's strange how opposite ends of the spectrum it can go.
Fingers crossed this dialysis will sort things out somewhat.

Nudge_gurl58

11-19-2008, 09:49 AM

As long as he's still fighting then that's good!
I'm wishing you the best Gypsy I know how hard this can all be!!!

Peggy Sue

11-19-2008, 10:22 AM

Ann just remember we are all here for you if you need anything please let us know ....

WashingtonBay

11-19-2008, 10:34 AM

Yeah - is there anyone on the forum close enough to actually help with their own hands?

lovesfortune

11-19-2008, 10:53 AM

Where exactly in MN are you?

Gypsy Rose

11-19-2008, 10:55 AM

Bemidji- not to close to anyone I think.

lovesfortune

11-19-2008, 11:00 AM

Dang, nope not by anyone that I know in Minnesota either that might be able to help you out.

Peggy Sue

11-19-2008, 11:01 AM

http://www.baywindfarm.com/forum/showthread.php?t=2193

PoniesRock101

11-19-2008, 01:56 PM

sending good wishes for dialysis tommorow!hangin there Ann!

cloedoll

11-19-2008, 02:08 PM

How the heck did I miss this thread?!
I don't know what an SO is, I feel so stupid.
Whatever's going on, I hope things get better quick.
(((HUGS)))

Gypsy Rose

11-19-2008, 02:31 PM

Significant Other, lol!

Sorry it took so long to update- the phone has been crazy today- every time I get on here, the phone rings, lol!

I talked to the nurse again, and they didn't get the dialysis started until late this afternoon, so he's on it right now. They'll be retesting blood and urine again in the morning, and they'll redo the dialysis. After that, he'll be getting it every other day for a while- no clue how long. He was still unresponsive all day, but they're hoping the dialysis starts turning him around. I won't know anything more until after they do the testing in the morning.

If my EMT friends hadn't prepared me for this, I would probably be freaking out right now.

cloedoll

11-19-2008, 02:35 PM

:doh: Sorry for mah blondeness.
Wow, I'm real sorry to hear all of this...I don't exactly understand everything, but good vibes coming your guys way.

Remali

11-19-2008, 02:40 PM

Good thing you have your EMT friends, they can help explain a lot of things to you and ease your worries.

Glad they got him on dialysis now.

Mercury

11-19-2008, 02:47 PM

Dang... I wish I were still up there. I don't know anyone in Bemiji anymore. If I were still up in that area I would critter sit for you for awhile. I'll be in Fargo next week though for thanksgiving. My fiance and I may be able to do something then.

Gypsy Rose

11-19-2008, 02:49 PM

Thanks Mercury- all of you are the best! I'm going to try to do something foreign lately and actually eat something, lol!

Arrow

11-19-2008, 02:49 PM

Still praying...

ownedby7horses

11-19-2008, 02:53 PM

Oh my gosh Gypsy, I just read this. I hope you're doing ok & Im praying for you & everyone else. ((((Hugs))))

Mercury

11-19-2008, 02:54 PM

I'm still working on it! How many critters do you have that need to be taken care of while your gone? Any kids that need to be babysat?

Gypsy Rose

11-19-2008, 03:08 PM

Mercury- I'll pm you.

PoniesRock101

11-19-2008, 03:11 PM

hoping he turns to the bettertommorow, and the dialysis gets im going for the better! wish therewas somethingi could do to help, i know how you feel, my aunt went through a similar thing but she was in her 90s-. Sending good wishes.

Gypsy Rose

11-19-2008, 03:20 PM

The hospital just called- my godparents are there right now-I gave the nurse permission to tell them everything that's going on with Jake. Now my godparents will be able to help me decide when I should go out there- AND I'll have a ride when I need it, as well!

WashingtonBay

11-19-2008, 03:27 PM

Oh - very good.

PoniesRock101

11-19-2008, 03:31 PM

glad your godparents are there! glad you'll ahve a ride there too- keeping you in my thoughts

Apaches Mom

11-19-2008, 04:00 PM

I'm sure there's a lot I don't understand about this whole dynamic and what you are going through, but I can't imagine not being there, the issue would be in getting the help I needed so I could be there. I hope you can go, soon. It's not so much an issue of what she's telling or not telling, it's a matter of part of the big picture you may be missing in only getting updates over the phone. I spent a lot of hours with my mom in the hospital that I wouldn't trade for anything, and she was never conscious.

I've been thinking the same thing. I would have to be there for MY sake. I'd go nuts being that far away. Nothing against the medical field personally (don't mean to offend anyone here), but I've had too many bad experiences where I've had to question the doctors and the care given. I'd have to be there to make sure everything was being done that could be. Yes, I'm probably one of the family members some nurses don't like. :innocent: But I've also witnessed less care being given because there was no family around to question it.

And even though he's not concious (sp?) its debatable much he's able to comprehend. Personally, I would be there squeezing my hubby's hand constantly just in case he could feel it but not respond.

I'm glad your godparents are there. At least they'll be able to make sure he's being take care of properly. And you can get updates from someone that knows him and knows his personality.

Take care of yourself and know that I'll be praying for you often!

Remali

11-19-2008, 05:31 PM

Well, it is nice to be there.....but if someone is unresponsive there really is nothing you can do and not much point in being there....unless it is easy for you to get there. But Gyspsy Rose is a good 2 to 3 hours away, so I can see why she wants to hold off and wait to go when he may be more responsive. And our weather up here has been sort of nasty too.....and a long drive in bad weather is sure no fun....especially when you are relying on others to give you a ride. While it is nice to be there for someone, when my mother was unresponsive in the hospital there wasn't anything for me to do there....sure I talked to her, but then I also lived about 20 minutes away too, and not almost three hours.

Gypsy Rose

11-19-2008, 06:28 PM

Just thought I'd give a quick update. My godparents will be staying overnight- I guess they knew a few other people who are in the hospital at the same time.

I've been assured that in their opinion, Jake is getting the best of care. They had a talk with the nurse, and they will be there when all the morning testing is done.

They also feel that at this pint, it's best if I stay here- I may be of far better use to Jake later on, and we can't have me gone form this place too long- the cats are already starting to figure out something's not right- I had to break up two fights between 3 different cats tonight- they're not normally like this. I thank everyone for their continued support, and I will update again as soon as I know more.

Peggy Sue

11-19-2008, 06:43 PM

Did you eat MORE then a hot dog or sandwich for DINNER?? You wont' do anybody any good if you go down!!!!

PoniesRock101

11-19-2008, 06:44 PM

i bet the cats have noticed, when my dogs saw my whole family going nuts aobut my aunt in the hospital they were pretty nutty. Hoping to keep hearing good news.

qh trail rider

11-19-2008, 07:47 PM

Gypsy Rose

11-19-2008, 07:55 PM

Did you eat MORE then a hot dog or sandwich for DINNER?? You wont' do anybody any good if you go down!!!!

I munched on crackers off and on all afternoon-after I ate the hot dog- then I had that taco dinner for supper I told you about- I ate it all, too, so there!:p

Gypsy Rose

11-19-2008, 07:59 PM

Gypsy Rose, you and Jake will continue to be in my thoughts and prayers.

I am a CT Tech in a small hospital, so I can't help but wonder about Jake's diagnosis. Have they told you very much about Jake's aneurysm? I am hoping that it only caused a small leak and that he has a good prognosis.

Right front hemisphere- about half that hemisphere is covered. It's now clotted, and they'e leaving it alone at this point. From what I understand, they're hoping that it will dissolve on it's own, and right now, since it's stabilized, they're more concerned with his kidneys right now.

Arrow

11-19-2008, 08:22 PM

You haven't been far from my thoughts all day! Hang in there!:)

magayle

11-20-2008, 04:04 AM

so sorry for all your going thru....bigs hugs for you

Apaches Mom

11-20-2008, 05:09 AM

I hope it didn't come across as me critisizing (I can't spell anymore) GP in any way. I was just saying for me, I"d go nuts not being there. At least her godparents are there and are able to get a feel for the situation. Hopefully, she'll be able to make a visit soon. Even more hopeful that he'll start improving soon!!!!

lovesfortune

11-20-2008, 05:44 AM

Waiting for a good update this morning after his dialysis.

Toodlestoo

11-20-2008, 06:36 AM

Still praying and thinking of you. Hopefully, today will bring good news.

rums_mom

11-20-2008, 06:51 AM

I am here for you as well...........stay positive. Keep up your strength. It is really good that the nurses released any info to you at all. Glad you have some family that were able to check on him.

{{{{{hugs}}}}}}}

lovesfortune

11-20-2008, 09:28 AM

Any news yet Gypsy?

Kaitlyn

11-20-2008, 09:31 AM

Prayers for you and your husband. How scary! Hope he is improving quickly.

vicklynn

11-20-2008, 09:43 AM

Any update????

Gypsy Rose

11-20-2008, 10:11 AM

Sorry this is so late- we decided last night there was no pint in me calling since my godfather was there- he finally called me a little bit ago. Jake's creatinine level has only dropped to 7.3 from 7.7. His kidney's aren't really functioning at all- they have him on dialysis again this morning.

He's still considered mostly unresponsive- if he's spoken to, he'll open his eyes just a tiny bit, and is moving his arms and legs, though not in a fully controlled manner.

So there we sit at this point, lol.

Arrow

11-20-2008, 10:13 AM

Still hoping and praying!

lovesfortune

11-20-2008, 11:27 AM

Thanks for the update. I will keep sending prayers and positive thoughts.

Mandzanita

11-20-2008, 12:02 PM

I just saw this thread...I'm so sorry you, him, and all involved have to go through this. You both will be in my prayers, I'm so sorry.

PoniesRock101

11-20-2008, 01:31 PM

glad hes slighly responsive hoping he gets more responsive as teh days go on. Best wishes Gypsy, hang in there!

Nudge_gurl58

11-20-2008, 03:50 PM

Gosh this is when it would be nice not to have to share the computer with my siblings! haha this is first time I could get on!!
I'll keep checking back for more updates!!!!
Wish I was closer to help...
Thinking of you!!!

HANG IN THERE GYPSY!

valleyrider

11-20-2008, 04:39 PM

Came here to check and see if there was any positive news. Still hoping he gets well soon Gypse

Gypsy Rose

11-20-2008, 05:17 PM

Forgot to add that this morning, they took the breathing tube out, and last that was known Jake was breathing on his own. Sheesh! How did I forget something as important as that?!

The nurses should be going through a shift change right now, so I'm going to give it a little bit before I call- I'll update further then.

Remali

11-20-2008, 05:35 PM

I'm glad that they extubated him, perhaps things will continue to improve now, that is a step in the right direction!!

Gypsy Rose

11-20-2008, 06:57 PM

I just talked to the nurse,and Jake's still breathing on his own- a little faster than they would like, but his oxygen levels are good enough that he can stay off the ventilator for now.

He's got a little more mobility- I guess he keeps trying to get out of bed, lol! The nurses are surprised at how strong he is. I had to let them know that he lifted weights at home, ha, ha!!

That's the good news. The bad is that he still can't talk yet, and he's still not really aware of his surroundings.

They'll be repeating the dialysis again on Saturday. Hopefully, he continues to improve, and no complications set in.

Thanks everyone for your continued prayers and support.

mtnmollie

11-20-2008, 06:59 PM

Hugs and prayers-

One day at a time.

PoniesRock101

11-20-2008, 07:15 PM

Glad to here hes dooing better! i'm happy to hear hes breathign alright and able to attempt to get out of bed. sending more thoughts and prayers.

Remali

11-20-2008, 07:34 PM

Wonderful! It sounds as he is improving, I bet he'll get better each day.....I am sure he is quite disoriented and the meds can add to that too.....this is better news, I am so glad to hear this!!

Arrow

11-20-2008, 07:37 PM

Sounds like progress!

Nudge_gurl58

11-21-2008, 03:28 AM

Yay some progress! :)

Waiting for morning update....

oursarge

11-21-2008, 04:17 AM

Hope things will continue to improve. I've been thinking about you.

mandisue

11-21-2008, 05:07 AM

Have you got to see him yet?

lovesfortune

11-21-2008, 07:21 AM

Yay for a better update! :) That's great that they took the tube out and he's breathing on his own.

magayle

11-21-2008, 07:46 AM

sure hope all improves today too.....your both in my prayers

Gypsy Rose

11-21-2008, 08:25 AM

I just thought I'd let everyone know that I'm waiting for the nurse to call me back- sometimes they get busy, and don't get time to get back to me. If I don't hear anything before noon, I'll be calling again.

I thank everyone for their continued support.

lovesfortune

11-21-2008, 11:25 AM

update when you get a chance.

Gypsy Rose

11-21-2008, 11:32 AM

Okay, I've got the latest update, and I have to say I really hate it when I find out something's been going on all week, and I now just finally get told!

Apparently, Jake has been running a low grade fever off and on all week, and they've been having problems regulating his body temperature. Okay, minor things that can be expected from this type of injury, but sheesh!

His creatinine level dropped down to 7.2- only one percentage point from the day before- so they put him back on the dialysis this morning. Not good- they were hoping to hold off until tomorrow.

His oxygen levels were also dropping a bit- he's down to almost 90, so they're hoping they can get by with just giving him oxygen in the nose- can't remember what they call that thing, lol!

I also got the impression that there was no point in calling every day- they'd let me know if there were any major changes. I don't like hearing things like that- I know the nurses have better things to do than talk to me, but it just doesn't seem very positive - meaning Jake's pretty much staying the same.

Remali

11-21-2008, 12:28 PM

It seems that it isn't all that unusual for patients to run a low-grade fever in the hospital, at least that is what I noticed when I worked at the hospital, it is still a concern tho that's for sure. Too bad you couldn't speak to one of the doctors directly, they can give you more info than an RN can.....maybe you could leave a message for one of his physicians and ask him to call you back at his convenience? No reason that the doc couldn't do that.

Oh, BTW, the nose thing is a nasal canula......lol. I hope I spelled that right....

Gypsy Rose

11-21-2008, 12:39 PM

My godfather did speak to the nephrologist(kidney doc) yesterday, and believe it or not, the nurses have been telling me pretty much everything. I do have his name, though. I'm going to be talking to one of my EMT friends tonight and see what he thinks- like I said, he and his brother have been through all this- I kind of want his or his brother's opinion before I jump, lol!

Thanks, Renee on the nose thing- that sounds right, anyway, whether it's spelled right or not IMO, right now is irrelevant- I know what you mean, anyway, lol!:)

lovesfortune

11-21-2008, 01:22 PM

Sorry you feel like you are bothering the nurses. I'm sure they are used to talking to patients family. I am still hopeful for better news for you.

PoniesRock101

11-21-2008, 02:01 PM

hope he can go without dialysis soon!

lisakaye

11-21-2008, 03:11 PM

I hope you get good news soon. Sending all my love to you...

starr

11-21-2008, 03:44 PM

sending good thoughts and prayers your way

Arrow

11-21-2008, 03:58 PM

Nothing to add, but that you have been in my thoughts--

PoniesRock101

11-22-2008, 07:44 AM

hoping for agood morning update!

Remali

11-22-2008, 08:18 AM

Morning! I hope today brings you good news. I woke up thinking about how things are going for you, hoping Jake is doing better this morning.

Nudge_gurl58

11-22-2008, 08:20 AM

Just popping in to see how he's doing and I'm thinking of you!

Gypsy Rose

11-22-2008, 08:27 AM

One of my friends is bringing his son over after a bit to give me a hand with some things- he's the one who needs to know how to do the chores in case I need it, anyway.

I found out ther's a way that I might be able to keep track of Jake's condition through a link to the hospital- one of my friends knows how to do it. I'm going to call her and see if she can help me set it up.

Remali

11-22-2008, 08:41 AM

Good idea to get some extra help trained in, in case you need it.

Not sure what kind of link that may be.....but I don't think the hospital can put any patient info out on their website. Unless perhaps you mean the doctor can email you? Due to HIPAA, the regulations on release of info are pretty strict now. Right now the only way to get updates on family members is thru their physician, or RN.

JackieB

11-23-2008, 04:23 PM

Gypsy, I just found this thread after being offline for the entire week. I'm so sorry to hear of Jake's sudden illness. Like everyone else, I'm thinking of you and Jake, and am here to offer whatever support I can.

Country Girl 43

11-23-2008, 04:32 PM

Thoughts and prayers headed her way from AZ!!! PLease keep us informed!!

TBgirl

11-23-2008, 05:18 PM

Oh wow I missed this thread. Gypsy I am so sorry to hear that this is happening! Your Jake is in my prayers! Stay strong and have faith. People can bounce back and be okay again!

PoniesRock101

11-23-2008, 05:21 PM

hehe! Glad ya got Gopher helping you! and that link thing sounds interesting. hope it works alright if ya do set it up.

offgridgirl

11-23-2008, 05:26 PM

Healing thoughts and Big Hugs for ya and your SO

Cat

11-23-2008, 05:31 PM

Thoughts and prayers to you and Jake! I thought I had responded to this thread previously, but I couldn't find my post.

jeezitsjacki

11-23-2008, 07:09 PM

how did I not see this?? I will be keeping you both in my thoughts, and I will keep checking in

Gypsy Rose

11-24-2008, 04:24 AM

Thanks so much everyone for your continued support. I'm going to most likely try to call today and see if the nurses will tell me how Jake's doing, but it may be later, because I may be taking the van in to get it fixed.

Nudge_gurl58

11-24-2008, 06:58 AM

I'm glad you are getting some help!!
Thanks for the updates!!
Wishing you the best...

vicklynn

11-24-2008, 07:14 AM

vicklynn

11-24-2008, 07:15 AM

Sure hope something possitive happens for him soon. Poor guy. Prayers still coming for his healing.

Peggy Sue

11-24-2008, 07:30 AM

waiting on an update today

Ann you need to do what is best for you!! Which means eat right and take care of yourself FIRST ... then worry about the rest of the stuff

Remali

11-24-2008, 08:14 AM

Glad you got out and had a weekend with friends, it helps to keep your life as normal as you can, and to get out and relax too.

With the new HIPAA regulations, any kind of info and patient updates these days has to pretty much come from the physician (or an RN). I went to school for Health Information and have worked in that area now for about 6 years, they are pretty strict about any release of information now. Speaking directly with his physician is still your best bet, just have the doctor call you when he has time to do so.