New update on Jake's condition

[Gypsy Rose]

Unfortunately, there has been very little progress with his condition- the aneurysm hasn't started dissolving, and he's only had one day free of dialysis since they started with it, He did not have it yesterday, and his creatinine levels spiked up to 8.0.

On top of this, his respiration stays way too high when they take him off sedation. They're now talking about putting in a trach tube.

I will be heading to Fargo very soon, as I have to do something that's going to be really hard.

Apparently, the hospital has determined that I have the right to decisions about Jake's care. My godparents will be going with me, and we will be meeting with the doctors for what they call a care conference. One of the decisions I will be making is whether to do a do not rescusitate (sp?) order. Ugh.:(

[vicklynn]

Oh my, that is hard hon. ((HUGS))and prayers.

[prissy18]

umm what does that word mean if u dont mind me asking. If u need to talk u can always pm me or call if u want my number let me know

[PoniesRock101]

Awww............. Ann, thats not good! hang in there-good luck at the meeting, and i'm sort of glad you now have decisons on his care- Make sure you eat and sleep enough- hang in there- senidng prayers and wishes.

[mtnmollie]

hugs and prayers-

[WashingtonBay]

I'm am very sorry. In my experience if it's the right thing to do, you don't feel conflicted about it.

I really think you need to go there and spend time. You'll know.

[alittleoffkey]

(((((((((((hugs))))))))))) I'm glad they decided you have the right to make decisions for him. Prayers up for you.

[Arrow]

I'll be thinking of you--it might be the toughest decision you will ever make, and I'm very sorry that you are having to face making it. I support you, no matter what decision you make.

[JackieB]

Oh dear. We'll be praying for you and I'm sure that you know what's in Jake's heart and what he would want if he were able to participate fully in decisions regarding his care. God Bless.

[FatSpottedAppy]

I am so sorry Gypsy.. ((((HUGS)))) .. Please keep us updated..

[prissy18]

aww hun. Your are in my prayers. Rember i am here if u need to talk. Here actually i am gonna pray for you now. Lord please give Ann the strength to get through this ordeal. Help her stay safe. Keep Jake well. Lord i just ask you to watch over there family. Amen

[Equine_Woman]

I'm so sorry Gypsy. I've been in a similar situation but it was my Mom making the decisions. My Step-Dad was in a terrible car accident and was in a coma for over 2 months. When he came out of it he had a trach tube, a stomach tube, a main line for drugs and we didn't think he'd ever be 'normal' again. Then he lost most of his windpipe to MRSA. He had so many surgeries to remove part of his windpipe that he barely has any left. Hang in there. He made a wonderful recovery though it took lots of time. I hope your SO makes the same journey safely!

[Country Girl 43]

Aww...sorry to hear about this. I know how hard it is. You and your family are in my prayers.

[Horseaholic]

oh GR I'm so sorry to hear all of this. Like others have said we are praying for you and I'm sure that you know what Jake would want. Hang in there and talk talk talk to him. God Bless.

[Gypsy Rose]

Thanks so much everyone! Hopefully, I'll know by tomorrow which day I'll be going out there.

[oursarge]

I'm so sorry. I wish things would be better, we were all hoping.

[AppyLady]

I'm sure sorry to hear that. I hope he starts showing some improvement soon.

[Remali]

I know how helpless you feel, I'm glad you have your Godparents and friends to go with you to the hospital. When my mom was in CCU I was there by myself and I remember how hard it was and it was so overwhelming...
just take each day as it comes and I am praying for Jake to improve.

[Cat]

I'm so sorry. I would be falling apart. Thoughts and prayers to both of you.

[Kaitlyn]

Oh God, prays for you. Good luck, I'm not sure what you're deciding, but obviously from the posts it's major. Do what you think is best!

[mouse]

My heart goes out to you.
I'm so very sorry you are having to deal with this.
{{{{HUGS}}}}

[Nudge_gurl58]

ack that would be so hard... I know that you'll know the right thing to do.... I'm thinking of you Gypsy, let me know if there's anything I can do.
We're here for you.

[Gypsy Rose]

I'm so sorry. I would be falling apart. Thoughts and prayers to both of you.

I don't have TIME, lol! If I'm not on here, I'm on the phone, which gives you all an idea of how much the phone's been ringing.

If I'm logged in, but you don't se activity, that's what's happening, lol! I haven't gotten the knack yet of typing and talking at the same time!

Seriously, I am extremely lucky.

The friend that got me out of the house last weekend, and who is going to try to go to Fargo- if his work will let him off- went to school with Jake, and I've known him for 23 years. He's also very level headed and good in a crisis, which helps a lot.

Somehow, I will get through this in one piece.

I really thank all of you for being here for me- it means so much!

[Arrow]

Thoughts and prayers to you today, Gypsy.:)

[grandmadeb]

Oh my, I am so sorry that things have not gone as well as we all hoped. I am sorry that you have such a tough decision to make. I am glad you have some support with you. My mom had a devastating stroke and we had to decide what to do and in the end my dad, brother and sister, cousin and myself had life support removed after 3 days. It was a joint decision and I was so glad for that. I would not have made my dad decide on his own for anything. We knew she would have hated being on machines but it was a tough thing to do. God bless you and you are in my prayers.

[lovesfortune]

Sending prayers and strength your way. We are here for you.

[Remali]

Just popping on to see if you had any updates.... maybe take part of a day to do nothing, just stuff for yourself.....don't answer the phone, take a break, and go soak in the tub and dump some bubble bath in it, and put on some soothing music!

[carla]

I'm so sorry, Gypsy.. you will be in my prayers during this time. I hope you'll be able to find peace in the decisions you make. (((hugs)))

[FoxFireEMT]

Prayers & thoughts heading your way Gypsy. :grouphug:Hope you have a safe trip & you will be in my thougths!

[jeezitsjacki]

I am so sorry.. what a hard thing you are going through

[Gypsy Rose]

The conference is set for Friday at 1 PM.

While he was at it, my godfather got the latest update- Jake's actually sitting up in bed, and is able to repeat back words, though it doesn't seem like he knows what he's really saying- just copying.

At least we wil have a little better idea on his mental status when we go out there.

Hopefully, things will start turning around for the better, now, though I know that anything can happen still- especially with that clot still sitting there.

As for my van, it was taken to a garage yesterday, and the news I got back wasn't good- it has everything I thought was wrong with it- guess I haven't lost some of my mechanical abilities, lol- and more. It could cost up to $1000 to fix.

Not worth it- I only paid $450 for it- it's going for scrap.

I do have help in finding another vehicle, so no worries on the financial end- it just may be a week or so, what with the holiday, before I can find the right one.

[alittleoffkey]

Well, that at least sounds like a step in the right direction. I'm still praying for both of you.

[KittySawrus]

Ann, that sounds like excellent news! The pair of you have been in my thoughts every day - I've even researched about anyeurisms (sp?) on the internet (yeah, you'd think I'da learnt how to spell it if I've been googling it >_<)! I'll keep thinking of you guys and hope it gets better from here.

(>")>

[PoniesRock101]

well- glad to here hes sitting up and at least getting words out of his mouth.

I hope ya get a van replacement soon- at least you didnt spend a fortune on it!hopefully your next one wont be to much either!

Good luck- Hang in there!

[TheBadLands]

Stay strong hun... I am so sorry you're going through this

[Remali]

Sitting up in bed is wonderful, that's huge progress! Oh Ann I am so happy and relieved! Please be sure to tell Jake that I am thinking of him and tell him I said Hi and he better get his butt all better!

[Gypsy Rose]

I'll make sure I do that, Renee!

[lovesfortune]

Sitting up in bed sounds like progress! I will be thinking of you on Friday and sending prayers.

[Nudge_gurl58]

Sounds like progress to me!

Thanks for all the updates!

[Nudge_gurl58]

Any updates? I'll be thinking of you Friday

[mtnmollie]

Sounds like progress to me!

Thanks for all the updates!

Yeah progress.

Hugs an prayers-

Happy Turkey Day.

[PoniesRock101]

well hoping your having a great thanksgiving and being kept busy! keep us updated at the meeting!

[Remali]

I just wanted to give everyone an update.... Gypsy Rose just called me, she's having a really good Thanksgiving with friends, and tomorrow they are heading to the hospital in Fargo to see Jake. I'll let you know if there is any more news, but last I heard Jake was improving. So it is a very good Thanksgiving!

[JackieB]

Wonderful news, Remali. Thanks for sharing.

[FoxFireEMT]

That's great Remali, thank you so much for the update! I will be praying & thinking about her tomorrow~~

[Remali]

I hope he continues to improve, but it did sound pretty good so far. If I get any more updates from Gypsy I will post it here.

[valleyrider]

What great news to get on Thanksgiving day . Thanks for letting us know Remali.

[Nudge_gurl58]

Thanks Remali!